Be part of the 1st World Col6 Myopathy Day!
your steps forward
6 june 2025
6 june 2025
JOIN NOW
our purposes
By shedding light on these rare disorders, we aim to drive earlier diagnosis, improve access to treatment, and promote the development of effective therapies.
Establish a global celebration event on Friday June 6th, 2025!
Highlight and support ongoing scientific research...
Reach out all patients who may feel isolated or excluded...
Understanding of Col6 RELATED myopathies!
Discover the organizations and individuals supporting the COL6 community.
By working together, we amplify our impact, drive research,
and bring hope to those affected. Join us in making a lasting difference for everyone living with COL6 myopathies.
By working together, we amplify our impact, drive research,
and bring hope to those affected. Join us in making a lasting difference for everyone living with COL6 myopathies.
Meet our partners and make the difference
Join our community and support individuals with COL6-related myopathies.
Your involvement can make a difference by raising awareness, advocating for research, and improving the lives of those affected by this rare condition. Together, we can achieve more!
Your involvement can make a difference by raising awareness, advocating for research, and improving the lives of those affected by this rare condition. Together, we can achieve more!
Discover the latest updates on COL6-related myopathies from around the globe. Stay informed about groundbreaking research, patient stories, advocacy efforts, and initiatives raising awareness for this rare condition affecting the collagen VI protein.
Become our friend and help us
News worldwide about col6 myopathy
Mark your calendar for the 6th of June 2025, and join us in the efforts to support the rare patient community and advance the Global Collagen VI Network.
Participation and support are so crucial!
Participation and support are so crucial!
contact us!
Be part of the World Collagen 6 Myopathy Day on 6th of June 2025! Your Steps Forward.
