Dear friends, we are glad to inform you
that it has been sold
The 1st World Col6 Myopathy Day
6 June, 2025
that it has been sold
The 1st World Col6 Myopathy Day
6 June, 2025
The 1st World Col6 Myopathy Day is an annual collaborative effort to globally raise awareness of individuals living with Collagen VI related Muscular Dystrophy (COL6- RD)
The 1st World Col6 Myopathy Day will be held on June 6, 2025.
For far too long, COL6- RD has been a neglected rare disease that has not received the attention it deserves from researchers, healthcare professionals, and the general public. Many patients with COL6- RD are unaware of their diagnosis and the progression of their condition.
We, the international community of COL6-related patients, deem it high time to bring about a paradigm shift in this regard!
The 1st World Col6 Myopathy Day will be held on June 6, 2025.
For far too long, COL6- RD has been a neglected rare disease that has not received the attention it deserves from researchers, healthcare professionals, and the general public. Many patients with COL6- RD are unaware of their diagnosis and the progression of their condition.
We, the international community of COL6-related patients, deem it high time to bring about a paradigm shift in this regard!
OUR OBJECTIVE
is to raise global awareness about this group of uncommon neuromuscular disorders, which can affect individuals from childhood to adulthood, as COL6-RD affects people worldwide and across all ethnic backgrounds.
is to raise global awareness about this group of uncommon neuromuscular disorders, which can affect individuals from childhood to adulthood, as COL6-RD affects people worldwide and across all ethnic backgrounds.
We understand that our strength lies only in understanding and unity. Today, the international community of COL6-RD demonstrates a global interconnection, understanding and realizing the problems with awareness of COL6RD that exist in every countary. Each national representative of COL6-RD takes personal responsibility and is ready to take the initiative in the greatest dissemination of information about The 1st World Col6 Myopathy Day.
We invite all individuals, families, organizations, healthcare professionals, researchers, drug developers, public health organizations, and anyone else with an interest in COL6-RD to join us in increasing awareness of this rare and progressive neuromuscular disorder.
Whether you are a longtime community member or new to our community, your participation in The 1st World Col6 Myopathy Day is very important. Together, we can spread awareness faster by sharing our spirit through reposts, shoutouts, and snaps of the COL6-RD awareness sticker on our favorite platforms. We have the power to make a difference.
We believe that through social media and increased awareness, we can reach a wider audience and have a greater impact. To stay informed about our global initiatives and educational components of 1st World Col6 Myopathy Day , we invite you to join us on our social networks (contacts). We will be sharing educational content about COL6-RD and the most relevant information for the world community.
We invite all individuals, families, organizations, healthcare professionals, researchers, drug developers, public health organizations, and anyone else with an interest in COL6-RD to join us in increasing awareness of this rare and progressive neuromuscular disorder.
Whether you are a longtime community member or new to our community, your participation in The 1st World Col6 Myopathy Day is very important. Together, we can spread awareness faster by sharing our spirit through reposts, shoutouts, and snaps of the COL6-RD awareness sticker on our favorite platforms. We have the power to make a difference.
We believe that through social media and increased awareness, we can reach a wider audience and have a greater impact. To stay informed about our global initiatives and educational components of 1st World Col6 Myopathy Day , we invite you to join us on our social networks (contacts). We will be sharing educational content about COL6-RD and the most relevant information for the world community.
EVERYONE INVITED TO SUPPORT 1ST WORLD COL 6 MYOPATHY DAY! THIS IS A GREAT EVENT FOR PATIENTS, FAMILIES AND SPECIALISTS WORKING WITH COL6-RD!
As June 6 approaches, there will be a variety of ways to get involved. Globally, we can work together to raise awareness of COL6-RD by sharing personal experiences, educational materials, and engaging with social media. We encourage everyone to get creative and find ways to celebrate this important global event in their own national communities.
The WORLD COL6 DAY will kick off in Oceania, where the day begins, and will be celebrated across the world!
The WORLD COL6 DAY will kick off in Oceania, where the day begins, and will be celebrated across the world!
Partners
Contacts
