Contacts
Be part of the 1st World Col6 Myopathy Day!
your steps forward
june 6, 2025
Register now!
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By shedding light on Ullrich congenital muscular dystrophy, Bethlem myopathy, Myosclerosis, and intermediate forms of collagen VI-related myopathies, we aim to drive earlier diagnosis, improve access to treatment, and promote the development of effective therapies."
The World Collagen VI Myopathy Day Purpose
Highlight and support ongoing scientific research on col6 related myopathy for concrete results...
Reach out all patients suffering col6 related myopathy who may feel isolated or excluded...
Be part of the 1^ global celebration event on Friday June 6th, 2025! join the zoom congress now!
your steps forward in this journey
Discover the latest updates on COL6-related myopathies from around the globe. Stay informed about groundbreaking research, patient stories, advocacy efforts, and initiatives raising awareness for this rare condition affecting the collagen VI protein.
Understanding Col6: #col6day Summary!
Join our community and support individuals with COL6-related myopathies. Your involvement can make a difference by raising awareness, advocating for research, and improving the lives of those affected by this rare condition. Together, we can achieve more!
Meet the organizations and individuals supporting the COL6 community. By working together, we amplify our impact, drive research,
and bring hope to those affected. Join us in making a lasting difference for everyone living with COL6 myopathies.
Join the Col6Network and meet our team!
The Zoom Congress on June 6, 2025!
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