join the newborn col6 network!
We are a group of associations united in advocating for patients with collagen VI-related diseases. Our representatives work tirelessly to amplify the voices of those affected, promote research, and improve patient quality of life.
Meet Our Representatives
Each association member of our Col6 Network brings unique expertise and unwavering dedication to our cause. Discover the individuals who are shaping our efforts and championing the needs of our community.
- Diana AbramovaCol6 Russia Association
- nalleli ibarraRed ColVI Latinoamérica
- Urs KleinholdermannDGM German Association
- Onur CakirCure CMD Turkey
- KOHEI WATANABEUllrich Group Japan
- noelia canelaFundación Noelia
- Giulia Da ReCollagene VI Italia Association
- jillian wiseCol6 Fund
- jignesh shahCollagen VI India Group
- Barbara JUstimianoInstituto Theodoro Brazil
Join Us in Making a Difference
Support our mission by becoming a member. Together, we can create a brighter future for individuals with collagen VI-related diseases.
#worldcol6day_endorsement
Our mission aligns with various institutions and organizations focused on improving medical understanding and patient care, whose support enhances our commitment to progress.
