Be part of the 1st World Col6 Myopathy Day!
your steps forward
6 june 2025
6 june 2025
GO NOW
our purposes
By shedding light on Ullrich congenital muscular dystrophy, Bethlem myopathy, Myosclerosis, and intermediate forms of collagen VI-related myopathies, we aim to drive earlier diagnosis, improve access to treatment, and promote the development of effective therapies.
Organize a global celebration event on Friday June 6th, 2025!
Highlight and support ongoing scientific research...
Reach out all patients who may feel isolated or excluded...
Understanding of Col6 RELATED myopathies!
Discover the organizations and individuals supporting the COL6 community.
By working together, we amplify our impact, drive research,
and bring hope to those affected. Join us in making a lasting difference for everyone living with COL6 myopathies.
By working together, we amplify our impact, drive research,
and bring hope to those affected. Join us in making a lasting difference for everyone living with COL6 myopathies.
Be our partner and make the difference
Join our community and support individuals with COL6-related myopathies.
Your involvement can make a difference by raising awareness, advocating for research, and improving the lives of those affected by this rare condition. Together, we can achieve more!
Your involvement can make a difference by raising awareness, advocating for research, and improving the lives of those affected by this rare condition. Together, we can achieve more!
Discover the latest updates on COL6-related myopathies from around the globe. Stay informed about groundbreaking research, patient stories, advocacy efforts, and initiatives raising awareness for this rare condition affecting the collagen VI protein.
Join the Network and meet our team
News worldwide about col6 myopathy
Download content or edit it by yourself!
Download the informational materials about col6 related myopatihies and social media posts prepared for you! Share and spread awareness to support the COL6 community.
Скачайте информационные материалы и посты для соцсетей, подготовленные для вас! Поделитесь И распространяйте осведомленность, чтобы поддержать сообщество COL6!
Scarica i contenuti informativi sulle miopatie da deficit del col6 e
I post social preparati per te.
Condividi e diffondi
consapevolezza per supportare la
comunità COL6!
I post social preparati per te.
Condividi e diffondi
consapevolezza per supportare la
comunità COL6!
