Be part of the 1st World Col6 Myopathy Day!
your steps forward
6 june 2025
By shedding light on Ullrich congenital muscular dystrophy, Bethlem myopathy, Myosclerosis, and intermediate forms of collagen VI-related myopathies, we aim to drive earlier diagnosis, improve access to treatment, and promote the development of effective therapies."
Collagen VI Community Purposes
Highlight and support ongoing scientific research on col6 related myopathy for concrete results...
Reach out all patients suffering col6 related myopathy who may feel isolated or excluded...
Be part of the 1^ global celebration event on Friday June 6th, 2025! join the zoom congress now!
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