By shedding light on Ullrich congenital muscular dystrophy, Bethlem myopathy, Myosclerosis, and intermediate forms of collagen VI-related myopathies, we aim to drive earlier diagnosis, improve access to treatment, and promote the development of effective therapies."
Collagen VI Community Purposes
Highlight and support ongoing scientific research on col6 related myopathy for concrete results...
Reach out all patients suffering col6 related myopathy who may feel isolated or excluded...
Be part of the 1^ global celebration event on Friday June 6th, 2025! join the zoom congress now!
Find out your language! Download, share and spread awareness to support the COL6 community.
we want The Col6 Myopathy Day as a United Nations Day! Go to the link and sign it!
We aim to formally request the official recognition of World Collagen VI Awareness Day by the United Nations, a crucial step in giving greater visibility and institutional weight to our cause.
Sign it
Download the flyer and spread awareness about #col6day!
Be active! Share your story on social media! Upload a photo, video or story and Tag our social account. Organize or join an awareness event. Raise awareness among people with our toolkits. Reach out to local media.