The World Col6 Myopathy Day will be held on June 6.

Be part of the 3RD World Col6 Myopathy Day!

your steps forward
june 6, 2027

WELCOME

By shedding light on Ullrich congenital muscular dystrophy, Bethlem myopathy, Myosclerosis, and intermediate forms of collagen VI-related myopathies, we aim to drive earlier diagnosis, improve access to treatment, and promote the development of effective therapies."

JOIN US

WHATSAPP
BE AWARE

Learn more
NETWORK

Learn more

<div style="font-size: 32px;" data-customstyle="yes"><span style="color: rgb(255, 255, 255);">we want The Col6 Myopathy Day as a United Nations Day! Go to the link and sign it!</span></div>

we want The Col6 Myopathy Day as a United Nations Day! Go to the link and sign it!

We aim to formally request the official recognition of World Collagen VI Awareness Day by the United Nations, a crucial step in giving greater visibility and institutional weight to our cause.

Sign it